One was a paediatric nurse; another a tradeshow exhibitor; another a musician and actor. Some are straight, some gay, some educated professionals; another was a run-away who lived many early years on the streets. Together, they represent the face of HIV – diverse in gender, sexuality, profession and upbringing.
In the lead up to World AIDS Day, Metro visited Toronto’s Casey House – once considered a hospice for those with AIDS to go in their final days; now a growing outreach centre as people living with HIV are living longer than ever.
We share some of their stories, and important messages in this new age of HIV treatment, here.

On his career in nursing: “It was the best thing I ever did, I found a job that I loved. I loved the challenge of it; nursing is a career where you never reach a point where you know everything. I worked with the most fantastic bunch of nurses and, most of all, the kids; I loved working with the kids. Kids are so resilient when they’re ill… So I loved it and it was devastating to me when I had to leave.”
On being HIV-positive: I think people get the impression now that it’s a breeze; that you just pop a few pills and life goes on. But people need to realize that being HIV positive is still very difficult and comes with a lot… it’s a burden and not to be taken lightly. People need to still be vigilant and need to take responsibility for their own bodies and be sensible. It’s not a piece of cake let me tell you.”
On his future: “Earlier on in the 90s, doctors were telling me to get my affairs in order. It was a bleak outlook but now I face the prospect of having a life expectancy of, who knows, I may well get into my golden years. It’s nice to have to worry about retirement planning.”

Cindy, 43. Born and raised in Toronto, Ont.
On getting infected: “I got infected August 22, 1994, because what I did, I only did once so I know the date. I think it was the date of the big subway crash at Dupont. I only shared needles once and that was the day.”
On women and HIV: “I told my story at a retreat how I infected myself and another woman came up to me crying and hugged me and said ‘I never thought I’d ever hear somebody say that because I did the same thing.’ And she’s a grandma. And it still remains my greatest moment in dealing with HIV. There wasn’t shame anymore, there wasn’t guilt. It was a ‘I’m not alone’ moment. So much of this disease can be isolating, especially for women. “
On HIV in her life: “It impacted my relationships, it impacted my family. My best friend in the whole world – we didn’t talk again because she wouldn’t let me hold her baby when it was born… It impacted all of my decisions.”

James, 57. Born and raised in Cape Breton, Nova Scotia.
How HIV entered his life: “Like a bomb.”
On his buying habits these days: “I went to ask my doctor and he said ‘You’re not going to die of AIDS, you’ll die of old age.’ So I went out and I bought the [photo] enlarger.”

Kevin, 48. Born and Raised on St. Joseph’s Island, Northern Ontario
On Medication: “You remember how fragile you are as a human being every time you pop those pills.”
On the arts: “I think that’s what keeps you healthy, being creative.”

Kenneth, 51. Born and raised in Hong Kong, moved to Winnipeg at 16, on a student visa.
On learning of his HIV status: “How are you going to tell your family, or your partner? It was a very quiet moment for me. “
On inspiration: “With no more job, I lost my home. I had nowhere to go. I had to learn a new set of skills. I guess it’s my attitude that keeps me going. I’m an achiever, I’m goal-driven.”
On prejudice: “Stigma and discrimination, it still exists. I was bullied once, they called me a chink. Now people judge me because I’m blind. We adapt.”

Tonie, 48. Born in Alberta, but adopted by an American family and grew up around the United States.
On HIV: “I wouldn’t wish this on anybody. I would wake up and think ‘What, am I going to die this year?’ I think for the first time in my life this year, I actually looked for help. This [Casey House] gave me a second life.”
On her adopted home of Toronto: “This is where I’m going to die. Not right now. Come and see me in 20 years.”

Bruce, 46. Born and raised in St. Catherines, Ont.
On living with HIV: “I never isolated myself away. I didn’t stop my life. My attitude was ‘I’m too bitchy to die. I have lots to do.’ They say only the good die young, so I always stayed a little bit bad… I’ve done it all, travelled three quarters of the world. I have no ‘What ifs.’”
On getting sick last year: “When you start to lose weight you open yourself to weakness. I was grey and gaunt, now I have my colour back, I have my life back… Casey House, it’s the best place on earth. The care that’s here, they’ve saved my life. We’d be dying if we had to rely on hospitals.
On the face of HIV: “It was considered a gay disease. [Now] it’s all walks of life. It could be your cousin, it could be your grandmother.”